Muscular Dystrophy News1d
How I’ve learned to embrace the highs and lows of caregiving
Learning that three of her sons had DMD challenged columnist Betty Vertin, but now she embraces the highs and lows of the experience.
Muscular Dystrophy News3d
There’s never a dull moment living with Duchenne muscular dystrophy
Columnist Shalom Lim appreciates how Duchenne never offers a dull moment as he prepares for the challenges and adventures in ...
Muscular Dystrophy News4d
Sevasemten lowers markers of muscle damage in BMD: Trial
Sevasemten significantly reduced two markers of muscle damage in treated Becker muscular dystrophy patients in Phase 2 CANYON ...
Muscular Dystrophy News8d
How my teaching job reminds me that I’m more than a caregiver
Columnist Betty Vertin knows that her teaching job adds to her exhaustion, but it's also helping her reclaim parts of herself.
Muscular Dystrophy News8d
Agamree recommended for NHS use in UK, approved in China
Agamree (vamorolone) was recommended for use in the NHS in England, Wales, and Northern Ireland for treating Duchenne ...
Muscular Dystrophy News10d
I’ll continue to do what I love, despite the FSHD ‘hangovers’
FSHD exacts a toll on columnist Robin Stemple when he is out and about. He calls these symptom flares "FSHD hangovers." ...
Muscular Dystrophy News11d
$10M in prizes offered toward work on FSHD treatments
Eight $250,000 prizes will be awarded for key milestones in FSHD treatments and $8 million will be given for showing clinical ...